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PNH Support in Open Access Government Journal

Posted on June 26, 2019

Maria Piggin, Chair of PNH Support talks about the importance of collaboration and education in the Open Access Government Journal

A focus on rare disease: Paroxysmal nocturnal haemoglobinuria (PNH)

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PNH Support joins Alliance with UK Bone Marrow Failure Patient Organisations
Survey for PNH Patients and Carers/Family Members for NICE Appraisal – closes 21 August 2020
Posted in News

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Sep 19
10:30 am - 12:00 pm

East Anglia Group Patient and Family Face-to-Face meeting

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East Anglia Group Patient and Family Face-to-Face meeting

May 8
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Online PNH Patient and Family Meeting (Zoom)

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  • A tablet for PNH (2024)
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    Recent Posts

    • EHA 2026 Congress: Representing the PNH Community
    • PNH Support celebrates its 10 Year Anniversary!
    • Living with PNH in your 20’s
    • Super Rare Campaign 2025
    • Join in with Super Rare 2025!

    Recent Posts

    • EHA 2026 Congress: Representing the PNH Community
    • PNH Support celebrates its 10 Year Anniversary!
    • Living with PNH in your 20’s
    • Super Rare Campaign 2025
    • Join in with Super Rare 2025!

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    Upcoming Events

    Sep 19
    10:30 am - 12:00 pm

    East Anglia Group Patient and Family Face-to-Face meeting

    Nov 7
    10:30 am - 12:00 pm

    Online PNH Patient and Family Meeting (Zoom)

    Mar 20
    10:30 am - 12:00 pm

    East Anglia Group Patient and Family Face-to-Face meeting

    May 8
    10:30 am - 12:00 pm

    Online PNH Patient and Family Meeting (Zoom)

    View Calendar

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